Dear Editor,

Our community-based organization, Tapestry Connections, is celebrating World Sickle Cell Awareness Day on June 19, 2022. The theme is “Shine the Light on Sickle Cell Disease.” The United Nations established World Sickle Cell Awareness Day in 2008.

Our desired goal is to increase awareness, build support networks, raise critical resources, and strengthen our collective resolve to advocate for access to sickle cell services and a cure for sickle cell disease.

Sickle cell disease (SCD) is one of the world’s most prominent leading genetic diseases that has severe physical, psychological and social consequences for those affected and their families. In its most homozygote form, it is one of the most lethal genetic diseases, affecting 90,000 to 100,000 Americans. As such, SCD is a significant public health concern. Studies show that the annual cost of medical care in the US for people who suffer from SCD exceeds $1.1 billion. The sickle cell warriors would like the community to use red lights in their windows/ porches/vestibules on June 19.

On behalf of the Sickle Cell Community, we greatly appreciate your help in shining a light on this disease and thereby helping to enhance the quality of life for families and individuals affected with SCD.

Thank you in advance for your support of the sickle cell community.

Sincerely, 

Deloris Mitchell, PhD Executive director, Tapestry Connections, Inc.